i have a son who is 16 with trisomy 9p with a translocation to the 14 and is going through puberty can anyone help with anythink to do with this or any information that could help ?
my heart gose out to shelbie mum and dad and i count my self lucky cos my son is 16 i was told the same and he is doing very well but i know what thay are going through as hard as it is we find from some where the will to carry on becaus we LOVE our kids and we know thay do have a good life because we care